Survey Data on Congenital Ichthyosis Across Age Groups

152.6 KB of quantitative data from an online survey using retrospective self-reporting. The dataset, authored by Talia Elgie, was last updated on June 1, 2026. It is shared under a CC-BY-4.0 license on figshare.

Use Cases

• Characterize disease presentation and progression based on retrospective self-reported survey data.
• Analyze patient-reported outcomes across different age groups mentioned in the title.
• Identify common symptoms and quality-of-life impacts based on the survey's quantitative measures.

Strengths

• Data is openly shared under a permissive CC-BY-4.0 license.
• The file is a structured XLSX format, likely facilitating direct analysis.

Limitations

• Row count and column-level documentation are unknown, requiring manual inspection after download.
• The dataset's small size (152.6 KB) suggests a limited scope and sample size.

Provenance

Source

figshare

Collection Method

Retrospective self-reporting via an online survey.

Freshness

Last updated 2026-06-01 03:21:48