Physician Survey on ALS Care Challenges in Russia, Belarus, and Kazakhstan

294 neurologists from three countries participated in an anonymous online survey from May to October 2025. The survey, authored by Ekaterina V. Pervushina, identifies barriers in diagnosing and managing amyotrophic lateral sclerosis (ALS). It reveals that over half of respondents diagnose ALS less than once a year and highlights significant cross-country differences in diagnostic and therapeutic practices.

Use Cases

• Compare diagnostic barriers like access to electromyography across different countries based on survey responses.
• Analyze prescription patterns for drugs like riluzole and edaravone among neurologists.
• Identify regional disparities in the use of supportive care interventions such as gastrostomy and respiratory support.
• Evaluate proposed solutions for improving ALS care, such as establishing specialized centers or enhancing training.

Strengths

• Includes responses from 294 neurologists, providing a substantial sample for analysis.
• Contains specific, quantified findings such as 58.2% of respondents diagnosing ALS less than once a year and 62.6% citing limited access to electromyography.
• Provides a direct cross-country comparison between the Republic of Bashkortostan (Russia), Belarus, and Kazakhstan.

Limitations

• Column-level documentation is absent; field semantics must be inferred after download.
• Row count is unknown, which may limit suitability assessment.
• Data may reflect geographic bias inherent to the three surveyed countries.

Provenance

Source

Ekaterina V. Pervushina via figshare

Collection Method

Anonymous online survey distributed to neurologists via professional networks.

Time Range

Survey conducted from May to October 2025.

Freshness

Last updated 2026-04-15 20:22:12; freshness should be verified.

Geography

Republic of Bashkortostan (Russia), Belarus, Kazakhstan