39 qualitative interviews conducted between October 2020 and September 2021 explore barriers and facilitators to concurrent hospice and dialysis care. Jane Schell's team interviewed patients, caregivers, clinicians, and administrators using a Consolidated Framework for Implementation Research (CFIR) guide. Data collection reached thematic saturation and transcripts were coded using NVivo software.
Use Cases
- Analyzing barriers to integrated hospice-dialysis care based on perspectives from patients, caregivers, clinicians, and administrators.
- Identifying infrastructure and educational needs for end-of-life care delivery based on interview domains.
- Comparing qualitative themes across different dialysis and hospice settings (e.g., non-/for-profit, urban/rural).
Strengths
- 39 interviews provide a multi-perspective view from patients, family caregivers, clinicians, and administrators.
- Data collection followed a structured CFIR-based interview guide across four domains.
- Interviews lasted 20-30 minutes and were conducted by experienced qualitative interviewers.
Limitations
- Description metadata is limited; actual data quality requires manual inspection after download.
- Column-level documentation is absent; field semantics must be inferred after download.
- Row count is unknown, which may limit suitability assessment.
Provenance
- Source
- Jane Schell, QDR Harvested Dataverse
- Collection Method
- Phone and in-person interviews, audio recorded and transcribed verbatim.
- Time Range
- October 2020 to September 2021
- Freshness
- Last updated 2025-10-20 19:58:57; freshness should be verified.
- Geography
- Patients and caregivers from one health system; other participants recruited nationally (United States).