A qualitative study explores stakeholder perspectives on legal and practical dimensions of health data sharing in federated networks under GDPR and EHDS. Magdalena Kogut-Czarkowska authored this paper, which was last updated on March 19, 2026. The 199.7 KB PDF likely contains analysis and discussion based on interviews with 19 experts.
Use Cases
- Analyze legal tensions between data protection theory and practical implementation based on expert perspectives.
- Evaluate the compatibility of federated network architectures with GDPR requirements based on the study's critical assessment.
- Design contractual frameworks for data access control in federated networks based on described arrangements and mechanisms.
- Inform the governance of emerging European data spaces based on insights from health data sharing challenges.
Strengths
- Based on perspectives from 19 experts with experience in federated network projects.
- Focuses on specific obligations under GDPR and the EHDS, providing legal specificity.
- Last updated on March 19, 2026, suggesting recent analysis.
Limitations
- Row count is unknown, which may limit suitability assessment.
- Column-level documentation is absent; field semantics must be inferred after download.
- The 199.7 KB size indicates a limited scope, likely a single academic paper rather than a large dataset.
Provenance
- Source
- figshare
- Collection Method
- Qualitative approach centered on expert interviews.
- Freshness
- Last updated 2026-03-19 06:34:09; freshness should be verified.