FRAX-TA: Longitudinal Assessment Data for Women with FMR1 Premutation

81 Italian women with genetically confirmed FMR1 premutation completed an 8-week Therapeutic Assessment protocol integrating a single-session CBT component. Federica Alice Maria Montanaro published the data sheet on figshare in April 2026. The study measured changes in five psychological domains across multiple timepoints.

Use Cases

• Analyzing the effect of intervention timing on psychological outcomes based on the randomized delivery of the Psychoeducational Assessment.
• Evaluating changes in anxiety, depression, and distress scores across baseline, post-intervention, and follow-up timepoints.
• Investigating participant satisfaction and perceived emotional support based on the anonymous feedback questionnaire.
• Studying the stability of improvements in perceived positive change based on mid-phase delivery results.

Strengths

• 81 participant records provide a substantive sample size.
• Data covers five specific psychological domains: anxiety, wellbeing, perception of positive change, depression, and psychological distress.
• The protocol includes randomization into four groups for timing analysis.
• Participant feedback provides qualitative data alongside quantitative scores.

Limitations

• Row count is unknown, which may limit suitability assessment.
• Column-level documentation is absent; field semantics must be inferred after download.
• Data may reflect geographic bias inherent to the Italian sample.

Provenance

Source

figshare

Collection Method

Data collected via an 8-week Therapeutic Assessment protocol based on the Cognitive Behavioral Assessment for Outcome Evaluation (CBA-VE).

Freshness

Last updated 2026-04-24 05:36:26; freshness should be verified.

Geography

Italy