Communication Impact on Independence in Adults with Cerebral Palsy, Western Sweden

A cross-sectional study of 139 adults with cerebral palsy born between 1979 and 1998 explores associations between communication abilities and independence across nine everyday life domains. The data includes assessments of communication effectiveness, speech impairment, and the use of augmentative and alternative communication (AAC). The dataset was authored by Ellen Backman and shared under a CC-BY-4.0 license.

Use Cases

• Analyze the association between communication effectiveness and independence levels based on the nine assessed life domains.
• Investigate the impact of speech impairment on independence in specific areas like relationships and employment.
• Explore the role of augmentative and alternative communication (AAC) in supporting independence for leisure and relationships.
• Model the transition to adulthood for individuals with cerebral palsy based on demographic and communication variables.

Strengths

• Includes 139 participants with a mean age of 30 years and a range from 18 to 43 years.
• Assesses independence across nine specific everyday life domains, such as Employment and education, Finances, and Relationships.
• Examines multiple communication factors: effectiveness, speech impairment, and AAC use.

Limitations

• Column-level documentation is absent; field semantics must be inferred after download.
• Row count is unknown, which may limit suitability assessment.
• Data is limited to a cross-sectional sample from western Sweden, which may affect generalizability.

Provenance

Source

figshare

Collection Method

Cross-sectional study using the Rotterdam Transition Profile for assessment.

Time Range

Participants born 1979-1998; study period not specified.

Freshness

Last updated 2026-05-13 05:51:22; freshness should be verified.

Geography

Western Sweden