Time to Chemotherapy and Oncofertility Counseling in Pediatric Cancer Patients, 2015-2022

265 pediatric patient records from the University of Rochester Medical Center diagnosed between January 1, 2015 and May 31, 2022. The dataset, created by John Mariano, includes metrics on time to systemic therapy and rates of oncofertility counseling across different cancer types. Only 12.5% of patients had a specialist oncofertility visit, and 42.4% received documented counseling from their primary oncology team.

Use Cases

• Analyze disparities in oncofertility care access based on patient demographics mentioned in the description
• Model the relationship between time to systemic therapy and receipt of counseling documented in the results
• Compare counseling rates and documented discussions of sexual health across different malignancy types described in the study

Strengths

• 265 patient records with a defined study period from 2015-2022
• Includes specific, reported metrics such as a 12.5% specialist visit rate and a median patient age of 7
• Data covers multiple cancer types, with hematologic malignancies making up 37.65% of the population

Limitations

• Column-level documentation is absent; field semantics must be inferred after download
• Row count is unknown, which may limit suitability assessment
• Data is from a single center, which may limit generalizability

Provenance

Source

John Mariano via figshare

Collection Method

Chart abstraction from medical records at the University of Rochester Medical Center

Time Range

January 1, 2015 to May 31, 2022

Freshness

Last updated 2026-05-11 04:26:28; freshness should be verified

Geography

Single-center data from the University of Rochester Medical Center, United States