Qualitative Interviews on Financial, Psychological, and Physical Issues in Dementia Care

Ben Gould's dataset contains anonymized transcripts from semi-structured interviews with eight carers and four persons living with dementia, plus one participant who was both, conducted in Essex, UK. The data provides multi-faceted evidence on financial, psychological, and physical health issues in dementia care, collected through a purposive sampling approach. The dataset was last updated on May 1, 2026, and is shared under a CC-BY-4.0 license.

Use Cases

• Analyzing themes of financial burden and future planning based on carer concerns about respite care and household expenses.
• Studying psychological impacts such as role change and loneliness mentioned in carer and patient narratives.
• Investigating physical health implications like exhaustion and the need for physical support described by participants.
• Exploring patient perspectives on denial of diagnosis and loss of independence detailed in the interview responses.

Strengths

• Includes perspectives from both carers (8) and persons living with dementia (4+1), providing multiple viewpoints.
• Data collection followed a defined social constructivist framework and thematic analysis methodology.
• Transcripts were anonymized, which may support ethical reuse for research.

Limitations

• The dataset is very small at 7.4 KB, indicating limited scope and sample size.
• Row count and column-level documentation are unknown, complicating suitability assessment.
• Data reflects a specific geographic context (Essex, UK), which may limit generalizability.

Provenance

Source

Ben Gould via figshare

Collection Method

Semi-structured interviews recorded and transcribed, using purposive sampling through local community groups.

Freshness

Last updated 2026-05-01 04:16:08; freshness should be verified.

Geography

Essex, United Kingdom