Electronic Patient-Reported Outcome Measures System for Indian Languages

An open-source system developed at Tata Medical Center enables electronic collection of patient-reported outcomes in multiple Indian languages. The system groups patients by disease and allows healthcare workers to visualize results and create questionnaires via a graphical interface. Initial user experience testing showed 93.5% of patient-role users could navigate the website without assistance.

Use Cases

• Collecting longitudinal patient-reported outcome data based on disease-specific questionnaires.
• Analyzing patient experience and system usability based on the 93.5% success rate in preliminary testing.
• Developing new medical questionnaires using the described graphical interface for healthcare workers.
• Studying healthcare communication improvements based on the system's ability to visualize domain-specific score trends.

Strengths

• System designed for localization in multiple Indian languages to address language barriers.
• Preliminary user testing achieved a 93.5% success rate for patient-role users.
• Built as an open-source tool using a content management system and contributed modules.

Limitations

• Row count, column definitions, and sample data are unknown, limiting suitability assessment.
• Last update date is unknown; freshness unverified.
• Data may reflect geographic and literacy-level bias inherent to the initial development context in India.

Provenance

Source

Santam Chakraborty, Tata Medical Center

Collection Method

Developed as an open-source tool following requirement analysis for a minimum viable product.

Geography

Developed for deployment in India, with localization for Indian languages.