Longitudinal Study of Cognitive Impairment and Daily Needs in Older Adults

Containing baseline and one-year follow-up data for 198 persons with cognitive impairment (PwCI) and baseline data for 86 care partners. It integrates qualitative interviews with quantitative assessments using validated scales like the ENHANCE-CAT and MoCA to explore daily challenges and support needs. The study focuses on community-dwelling older adults aged 60+ with mild cognitive impairment, traumatic brain injury, or post-stroke cognitive impairment.

Use Cases

• Analyze longitudinal changes in daily functioning and technology use among the 114 PwCI with Year 2 follow-up data.
• Compare baseline cognitive function, as measured by MoCA scores, across diagnostic groups (MCI, TBI, PSCI).
• Examine the relationship between social engagement scores from standardized questionnaires and reported daily challenges.
• Assess care partner support needs using data from the 86 enrolled CareP and their associated PwCI.
• Investigate the impact of cognitive impairment on activities of daily living using the ENHANCE Common Assessment Tool (ENHANCE-CAT).

Strengths

• Longitudinal design with one-year follow-up data for 114 persons with cognitive impairment.
• Uses validated instruments like the ENHANCE-CAT and MoCA for reliable cognitive and functional assessment.
• Includes multi-site data from 198 enrolled PwCI and 86 care partners, providing paired perspectives.

Limitations

• Convenience sample of 198 PwCI limits generalizability to broader populations.
• Attrition reduced the PwCI cohort from 198 in Year 1 to 114 in Year 2, a 58% retention rate.
• Care partner data is cross-sectional only, with no longitudinal follow-up conducted for this group.

Provenance

Source

ICPSR Harvested Dataverse, author Wendy Rogers.

Collection Method

Multi-site longitudinal study combining in-depth qualitative interviews with quantitative assessments.

Time Range

Baseline and one-year follow-up for PwCI; single time point for care partners.

Freshness

Data last updated on 2026-02-23.

Geography

Community-dwelling participants in the United States, with state as the smallest geographic unit.