Lynch Syndrome Risk Communication: Randomized Trial of Visual Arrays for Genetic Testing

A randomized controlled trial examining how individuals understand genetic risk and communicate it to family members. The study involved an online survey of Amazon Mechanical Turk participants, collecting data on demographics, health literacy, numeracy, risk perception, and familial communication. The dataset was authored by Jordan Keels and last updated on 2026-04-30.

Use Cases

• Analyzing the effect of visual array formats on risk comprehension based on the randomization described.
• Modeling factors influencing intrafamilial communication of genetic risk based on survey questions about familial communication.
• Studying the relationship between health literacy/numeracy and risk perception based on the collected measures.
• Comparing the impact of 'standard choice' versus 'enhanced choice' framing on communication decisions based on the second randomization.

Strengths

• Data originates from a randomized controlled trial, a strong methodological design for causal inference.
• Survey collected multiple relevant constructs including demographics, health literacy, numeracy, and risk perception.
• Participants were randomized into two distinct intervention arms for visual arrays and communication framing.

Limitations

• Row count and sample size are unknown, which may limit suitability assessment.
• Column-level documentation is absent; field semantics must be inferred after download.
• Data may reflect bias inherent to the Amazon Mechanical Turk participant pool.

Provenance

Source

Harvard Dataverse

Collection Method

30-question online survey distributed via Amazon Mechanical Turk with participant randomization.

Time Range

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Freshness

Last updated 2026-04-30 21:31:06; freshness should be verified.

Geography

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