Coding Scheme: Qualitative Interviews on Palliative Care in Phase I Oncology Trials

A qualitative coding scheme from interviews conducted between September 2022 and July 2024 across three Belgian university hospitals. The dataset, authored by Frederick Daenen and shared under a CC-BY-4.0 license, captures perspectives from 48 participants, including patients, caregivers, and healthcare providers, on quality of life and palliative care integration in phase I oncology trials.

Use Cases

• Analyzing themes on barriers to palliative care integration based on interview content about misconceptions and communication gaps.
• Studying patient and caregiver perspectives on quality of life support based on reported experiences of reactive and inconsistent care.
• Developing frameworks for structured palliative care conversations based on participant-suggested strategies for flexible integration.
• Comparing healthcare provider viewpoints on person-centered care based on descriptions from oncologists, palliative care specialists, and general practitioners.

Strengths

• Multi-perspective design includes 48 participants from six distinct stakeholder groups, including 16 patients and 12 phase I staff.
• Data collection spanned nearly two years (September 2022 to July 2024), providing a contemporary snapshot of clinical practices.
• Ethical approval was gained from the relevant institutions, suggesting adherence to research standards.

Limitations

• Row count is unknown, which may limit suitability assessment for quantitative analysis.
• Column-level documentation is absent; field semantics must be inferred after download.
• The dataset is very small at 9.5 KB, indicating limited scope, likely containing only the coding scheme rather than full interview transcripts.

Provenance

Source

Frederick Daenen via figshare.

Collection Method

Semi-structured interviews analyzed using qualitative content analysis, with convenience and snowball sampling.

Time Range

September 2022 to July 2024

Freshness

Last updated 2026-05-05 17:39:24; freshness should be verified.

Geography

Three Belgian university hospitals