HAM/TSP Patient Self-Management Strategies from Qualitative Interviews

Qualitative interview data from seven participants with HTLV-1 associated myelopathy/tropical spastic paraparesis (HAM/TSP) in Japan. The data was collected via semi-structured interviews and an open-ended questionnaire, transcribed verbatim, and analyzed using qualitative content analysis. It was authored by Saori Yamaguchi and last updated in March 2026.

Use Cases

• Analyze qualitative themes of self-management strategies based on the six identified core categories.
• Study patient adaptation to chronic conditions based on descriptions of maintaining body functions and acquiring new ways.
• Investigate the impact of disease characteristics (lack of curative treatment, low social awareness, infectious nature) on self-management approaches.

Strengths

• Data is based on verbatim transcriptions of semi-structured interviews with seven participants.
• Analysis identified six distinct core categories describing self-management strategies.
• The dataset is openly licensed under CC-BY-4.0.

Limitations

• Row count is unknown, which may limit suitability assessment.
• Column-level documentation is absent; field semantics must be inferred after download.
• The dataset is very small (9.5 KB), indicating limited scope.

Provenance

Source

Saori Yamaguchi

Collection Method

Semi-structured interviews and an open-ended questionnaire with seven participants, analyzed via qualitative content analysis.

Freshness

Last updated 2026-03-19 17:29:44; freshness should be verified.

Geography

Japan