Patient Distribution by Symptom Score Change Over Four Weeks

Comprising the distribution of patients based on changes in their weekly median symptom scores, measured on a 0–10 Numerical Rating Scale (NRS), during a 4-week period prior to an End of Study Group (EoSG) point. The data is provided in an XLS file with a size of 5.5 KB. It was authored by Vrinda Saraff and last updated in March 2026.

Use Cases

• Analyze the distribution of patients by the change in their weekly median symptom scores to identify trends in symptom progression.
• Examine the relationship between the 0–10 NRS symptom scores and patient-reported outcomes mentioned in the tags.
• Investigate symptom score changes over the 4-week pre-EoSG period in the context of rare disorders like X-linked hypophosphataemia, as indicated by the tags.

Strengths

• Data is focused on a specific 4-week pre-EoSG period, providing a clear temporal scope.
• The dataset uses a standardized 0–10 Numerical Rating Scale (NRS) for symptom measurement.
• It is published under a permissive CC BY 4.0 license, allowing for reuse and modification.

Limitations

• The dataset is very small at 5.5 KB, indicating a limited scope and likely a small number of observations.
• No column names or sample data are available, limiting understanding of the data structure and available features.
• The tags suggest a focus on a specific rare disorder (X-linked hypophosphataemia), which may limit generalizability.

Provenance

Source

figshare, authored by Vrinda Saraff.

Collection Method

The description indicates it is related to a methods study, but the specific data collection method is unknown.

Time Range

Covers a 4-week period prior to an End of Study Group (EoSG) point.

Freshness

The dataset was last updated in March 2026, indicating it is current.