UK Incident Cohort Demographics for Primary Glomerulonephritis, 1999-2021

10,308 patients with primary glomerulonephritis (pGN) and 8,302 with adult polycystic kidney disease (ADPKD) from the UK Renal Registry, initiating kidney replacement therapy between 1999 and 2019. The dataset, created by Stephen A Roberts and last updated in 2026, contains demographic and clinical outcome data for this incident cohort. It provides national-level incidence rates and survival analysis for advanced kidney disease requiring replacement therapy.

Use Cases

• Analyzing incidence trends of kidney replacement therapy based on primary glomerulonephritis subtypes mentioned in the description
• Comparing patient survival outcomes based on treatment modality (transplantation, PD, haemodialysis) detailed in the results
• Investigating demographic disparities in disease incidence based on age, sex, and deprivation factors described in the study
• Modeling healthcare resource needs based on the epidemiology of end-stage kidney disease from primary glomerulonephritis

Strengths

• Includes 10,308 pGN and 8,302 ADPKD patient records for a substantial cohort size
• Covers a long temporal range from 1999 to 2021 with follow-up data
• Provides specific incidence rates (e.g., 11.8 pmp for pGN) and survival statistics (e.g., 81.8% 10-year survival after transplantation)

Limitations

• Row count and column-level documentation are absent; field semantics must be inferred after download
• Data is limited to patients requiring kidney replacement therapy and does not capture those managed conservatively
• The dataset is very small at 9.5 KB, indicating limited scope or highly aggregated data

Provenance

Source

UK Renal Registry

Collection Method

Registry data analysis for adults initiating kidney replacement therapy, using multivariable Poisson and Cox regression models

Time Range

1999-2019 for KRT initiation, with follow-up to December 2021

Freshness

Last updated 2026-04-28 17:25:38; freshness should be verified

Geography

United Kingdom