Rare Disease Stakeholder Framework for India

India-focused stakeholder analysis framework for rare disease policy development. Mohua Chakraborty Choudhury created this small 13.5 KB Excel file, which was last updated in March 2026. It contains a structured framework for mapping and analyzing stakeholders.

Use Cases

• Map stakeholder categories like International Patient Organizations, Think Tanks, and Allied Health Professionals for network analysis.
• Analyze stakeholder roles in Driving Policy Execution and Systemic Transformation using framework attributes.
• Identify Training Programs Need based on stakeholder engagement levels from Highly Engaged Stakeholders data.
• Support exploratory studies on Rd Policy implementation using the structured analysis matrix.

Strengths

• Framework is Well Researched and structured for policy analysis.
• Data is openly licensed under CC-BY-4.0 for reuse.

Limitations

• Extremely small dataset at only 13.5 KB, indicating limited quantitative data.
• Scope is narrowly focused on a single framework for rare diseases in India.
• No sample data or row count provided to assess comprehensiveness.

Provenance

Source

Mohua Chakraborty Choudhury via figshare.

Collection Method

Developed from an exploratory study using Semi Structured Interviews.

Freshness

Last updated March 2026.

Geography

India