Participant Characteristics: Interviews on Down Syndrome Care in Karachi, Pakistan

Karachi, Pakistan is the focus of this qualitative dataset from a study investigating healthcare experiences for children with Down Syndrome. It contains transcribed data from 23 in-depth interviews with 10 caregivers and 13 healthcare providers, collected by author Zeeluf M. Qaisar. The data was analyzed using a socio-ecological framework and last updated on the platform in April 2026.

Use Cases

• Analyzing themes of stigma and social inclusion based on community-level factors described.
• Studying healthcare system barriers based on organizational factors like service costs and therapist burnout.
• Modeling caregiving journey narratives based on intrapersonal factors like shock, grief, and acceptance.
• Investigating policy gaps based on mentions of absent clinical guidelines and poor epidemiologic data.

Strengths

• Data is based on 23 in-depth interviews, providing detailed qualitative insights.
• Study design includes perspectives from two key stakeholder groups: 10 caregivers and 13 healthcare providers.
• Analysis was guided by a structured socio-ecological framework.
• Dataset is openly available under a CC-BY-4.0 license.

Limitations

• Row count and column-level documentation are absent; field semantics must be inferred after download.
• The dataset is very small at 5.5 KB, indicating limited quantitative scope.
• Data reflects a specific geographic and cultural context (Karachi, Pakistan), which may limit generalizability.

Provenance

Source

figshare, author Zeeluf M. Qaisar

Collection Method

Purposive sampling and semi-structured interviews conducted at a private NGO and a tertiary care hospital, followed by deductive content analysis.

Freshness

Last updated 2026-04-30 17:50:31; freshness should be verified.

Geography

Karachi, Pakistan