Anal Fistula Patient Interview Data on Stigma and Identity

A qualitative dataset contains interview data from 15 participants with anal fistula, exploring experiences of stigma and identity. The study was conducted by Karin Adamo and involved interviews at two hospitals, with data analyzed via qualitative content analysis. It captures themes of shame, uncertainty, and social withdrawal.

Use Cases

• Analyze interview transcripts for themes like 'shame', 'uncertainty', and 'social withdrawal' to understand psychosocial impacts of anal fistula.
• Study the relationship between patient-reported 'Quality-of-Life' experiences and interactions with 'empathetic healthcare providers' mentioned in the data.
• Examine the three identity-shaping mechanisms ('Knowledge Uncertainty', 'Expectations and Experiences', 'Quality-of-Life') to model patient coping strategies.
• Investigate how participants' descriptions of 'pain and stigma' correlate with reported levels of 'social withdrawal' and 'altered sense of self'.

Strengths

• Data is derived from in-depth interviews with 15 participants undergoing active treatment for a specific medical condition.
• The study design explicitly explores three distinct identity-shaping mechanisms, providing a structured analytical framework.
• The dataset is openly shared under a CC BY 4.0 license, facilitating academic reuse.

Limitations

• The dataset is very small at 5.5 KB, indicating limited scope and likely containing only summary or coded themes, not full interview transcripts.
• With only 15 participants from two hospitals, findings may not be generalizable to broader populations with anal fistula.
• As a qualitative study, the data is not structured in rows and columns, limiting quantitative or machine learning applications.

Provenance

Source

Karin Adamo, via figshare.

Collection Method

Qualitative content analysis of interviews with 15 participants at two hospitals.

Time Range

null

Freshness

null

Geography

null