<p>Participant Outcomes and Measurement Instruments.</p>

A 2026 protocol dataset from a multi-centre prospective cohort study evaluating the HEart faiLure carer support Programme (HELP). The dataset, created by Gareth Thompson, contains quantitative and qualitative measurement instruments for 180 carers and approximately 180 patients across five sites in the United Kingdom.

Use Cases

• Analyzing intervention fidelity and acceptability based on questionnaire and interview data mentioned in the description
• Conducting process and economic evaluations based on logs and cost data mentioned in the description
• Mapping implementation factors to theoretical frameworks like CFIR and NPT based on the integrative analysis described
• Studying contextual adaptations for clinical rollout based on the mixed-methods data collected from multiple stakeholders

Strengths

• Data is explicitly linked to a registered clinical trial (NCT07373041)
• Study design includes 180 carers and approximately 180 patients across five UK sites
• Mixed-methods approach collects quantitative questionnaires/logs and qualitative interviews

Limitations

• Row count is unknown, which may limit suitability assessment
• Column-level documentation is absent; field semantics must be inferred after download
• Data is a study protocol; actual participant outcome data may not yet be included

Provenance

Source

Gareth Thompson via figshare

Collection Method

Data collected as part of a mixed-method implementation study with a prospective cohort design.

Time Range

Study protocol dated 2026; temporal coverage of actual data collection is not specified.

Freshness

Last updated 2026-04 17:46:44

Geography

Five sites across three nations of the United Kingdom: Northern Ireland, England, and Scotland.