Participants Demographics from a Delphi Study on Self-Determination Support

A 2026 Delphi study by Pála Björk Kúld collected qualitative and quantitative data from 10 relatives and 13 professionals on supporting self-determination in individuals with profound intellectual and multiple disabilities. The dataset, 5.5 KB in size, contains results from four rounds of consensus building, including 79 initial themes. It is shared under a CC-BY-4.0 license on figshare.

Use Cases

• Analyzing consensus themes on support strategy advantages and disadvantages based on the 79 identified themes.
• Studying differences in perspectives between relatives and professionals based on the participant groups described.
• Identifying preconditions for effective support, such as communication aids and staffing, mentioned as disadvantages in the study.

Strengths

• Data originates from a structured four-round Delphi study involving 23 total participants.
• Thematic analysis produced 79 distinct themes, with consensus reached on 72 of them.
• Dataset is openly shared under a permissive CC-BY-4.0 license.

Limitations

• Row count is unknown, which may limit suitability assessment.
• Column-level documentation is absent; field semantics must be inferred after download.
• The dataset is very small at 5.5 KB, indicating limited scope.

Provenance

Source

figshare

Collection Method

A four-round Delphi study with qualitative data collection and thematic analysis, followed by Likert-scale surveys to explore consensus.

Freshness

Last updated 2026-05-19 17:26:43; freshness should be verified.