Quotes for Self-Advocacy and Refusal from South African Cancer Patients

31 people with breast or cervical cancer participated in focus groups in Gauteng, KwaZulu Natal, and the Western Cape, South Africa. The dataset contains qualitative quotes and themes from patient journey mapping, focusing on care personalization, self-advocacy, and intersecting vulnerabilities. It was authored by Sarah Day and shared on figshare under a CC-BY-4.0 license.

Use Cases

• Analyzing patient narratives about self-advocacy and refusal based on the qualitative themes described.
• Studying the impact of intersecting social identities on healthcare access based on the 'intersecting vulnerabilities' theme.
• Mapping structural and institutional factors in cancer care based on the '(de)personalised care' theme from patient journeys.

Strengths

• Includes direct patient voices from 31 participants, a group often missing from literature.
• Focuses on two specific cancers (breast and cervical) across three provinces in South Africa.
• Data is shared under a permissive CC-BY-4.0 license for reuse.

Limitations

• Dataset is very small at 9.5 KB, indicating limited scope.
• Column-level documentation is absent; field semantics must be inferred after download.
• Row count is unknown, which may limit suitability assessment.

Provenance

Source

figshare, authored by Sarah Day.

Collection Method

Collected via six focus group discussions and patient journey mapping with patients who had completed treatment.

Freshness

Last updated 2026-03-25 17:34:11; freshness should be verified.

Geography

Gauteng, KwaZulu Natal, and Western Cape, South Africa.