Rare Disease Stakeholder Scores for Knowledge, Interest, Position, and Power

An 88.8 KB Excel dataset provides a stakeholder analysis framework for rare disease policy. It contains scores assigned to individual stakeholders across four characteristics: Knowledge, Interest, Position, and Power. The framework was authored by Mohua Chakraborty Choudhury and last updated in March 2026.

Use Cases

• Analyze stakeholder influence by comparing Power and Position scores across different stakeholder groups.
• Identify knowledge gaps among stakeholders by examining the Knowledge score distribution.
• Map stakeholder engagement levels by correlating Interest scores with their stated Position.
• Prioritize stakeholders for policy communication strategies based on composite scores of Knowledge, Interest, Position, and Power.

Strengths

• Framework includes four specific, scored characteristics: Knowledge, Interest, Position, and Power.
• Released under a permissive CC-BY-4.0 license for reuse.

Limitations

• Small dataset at 88.8 KB, indicating limited scope and likely low row count.
• Data collection methodology and sample size are not detailed, limiting reproducibility assessment.
• Geographic focus appears to be India, limiting generalizability to other regions.

Provenance

Source

Mohua Chakraborty Choudhury via figshare.

Collection Method

Derived from an exploratory study involving semi-structured interviews, as indicated by platform tags.

Freshness

Last updated March 2026.

Geography

India (inferred from platform tags: 'India P').