Sample Demographics from a Qualitative Study on Rare Renal Disorders

A qualitative descriptive study based on 28 in-depth interviews with 11 adolescents and young adults and 17 parents living with rare renal disorders. The dataset, authored by Melissa Kinch, was last updated on June 3, 2026, and explores experiences of healthcare transition between paediatric and adult services. The study used reflexive thematic analysis and results are reported according to the COREQ checklist.

Use Cases

• Analyzing patient and parent perspectives on healthcare transition based on the described interview themes.
• Studying the interplay between health and social support systems for young adults with rare diseases based on the study's findings.
• Informing the development of healthcare transition interventions based on the identified need for individualized and holistic support.

Strengths

• Includes data from 28 in-depth interviews, providing qualitative depth.
• Results are structured according to the COREQ reporting checklist for qualitative research.
• Patient and public contribution involved a rare-disease advisory group in study material design.

Limitations

• The dataset is very small at 5.5 KB, indicating limited quantitative scope.
• Row count and column-level documentation are unknown, requiring manual inspection after download.
• The description does not specify geographic or temporal coverage for the sample.

Provenance

Source

Melissa Kinch via figshare.

Collection Method

Qualitative descriptive study using reflexive thematic analysis of 28 in-depth interviews.

Freshness

Last updated 2026-06-03 17:54:32.