Caregiver and Provider Interviews on Down Syndrome Healthcare in Karachi, Pakistan

23 in-depth interviews with caregivers and healthcare providers explore the healthcare journey for children with Down Syndrome in Karachi. The qualitative data, collected via purposive sampling at an NGO and a tertiary care hospital, was analyzed using a socio-ecological framework. The study, authored by Zeeluf M. Qaisar, was last updated on the platform in April 2026.

Use Cases

• Analyzing barriers to diagnosis and care based on themes of delayed diagnosis and scarce counseling.
• Studying the financial burden on families based on descriptions of high costs and reliance on NGOs.
• Investigating stigma and social inclusion based on community factors described in the data.
• Identifying policy gaps based on mentions of absent clinical guidelines and poor epidemiologic data.

Strengths

• Data is based on 23 in-depth interviews with a defined participant mix of 10 caregivers and 13 providers.
• Analysis is structured using a recognized socio-ecological framework, providing thematic depth.
• The dataset is openly licensed under CC-BY-4.0, permitting broad reuse.

Limitations

• The dataset is very small at 13.5 KB, indicating limited scope and sample size.
• Row count and column-level documentation are unknown, complicating suitability assessment.
• Data reflects experiences from a single city (Karachi), which may limit generalizability.

Provenance

Source

Zeeluf M. Qaisar via figshare.

Collection Method

Purposive sampling and semi-structured interviews conducted at a private NGO and a tertiary care hospital.

Freshness

Last updated 2026-04-30 17:50:30; freshness should be verified.

Geography

Karachi, Pakistan.