Reflections on participation in the community, as self-reported by young people with cereb

A qualitative study captures the community-based participation experiences of 15 young people with cerebral palsy aged 15 to 26 years. Data consists of 421 inductively coded self-reported reflections, photographs, or videos, analyzed into 6 themes. The dataset was authored by Jacinta Quartermaine and last updated in May 2026.

Use Cases

• Analyzing barriers to community participation based on self-reported reflections about CP characteristics and environmental accessibility.
• Studying the role of social support and acceptance based on themes concerning attitudes and actions from others.
• Investigating the impact of personal factors like confidence and emotions on activity engagement as described in participant reflections.
• Developing frameworks for inclusive interventions based on identified factors like equipment availability and activity accommodations.

Strengths

• Includes reflections from 15 participants with diverse motor and communication abilities, as detailed by Gross Motor Function and Viking Speech Scale classifications.
• Data is structured into 421 codes, 22 subthemes, and 6 clearly defined thematic areas derived from reflexive thematic analysis.
• Uses accessible data collection methods (written, photo, video) to capture perspectives from individuals with varying abilities.

Limitations

• Row count is unknown, which may limit suitability assessment for quantitative analysis.
• Column-level documentation is absent; field semantics must be inferred after download.
• The dataset is very small at 28.9 KB, indicating a limited scope focused on qualitative insights from a specific group.

Provenance

Source

figshare

Collection Method

Participant-provided regular written reflections, photographs, or videos, analyzed using reflexive thematic analysis.

Freshness

Last updated 2026-05-17 03:20:02; freshness should be verified.