International Survey of Speech Therapists on ALS Outcome Measures and Remote Monitoring

Sixty-six speech and language therapists from 13 countries responded to a survey on managing dysarthria and dysphagia in Amyotrophic Lateral Sclerosis. The survey captured perspectives on the clinical meaningfulness of existing measurement instruments, the utility of remote monitoring, and useful assessment devices. The dataset was authored by Lesley Doyle and last updated in April 2026.

Use Cases

• Analyze clinician perspectives on the clinical meaningfulness of speech and swallow outcome measures for ALS.
• Investigate the perceived utility and barriers to adopting remote monitoring technologies in speech therapy.
• Identify which assessment devices, such as speech intelligibility software or tongue pressure measurement tools, are deemed most useful for patient care.
• Inform the selection of digital speech and swallow outcomes for future ALS research studies.

Strengths

• Includes responses from 66 speech and language therapists across 13 countries, providing an international perspective.
• Contains specific quantitative findings, such as 77% of respondents wanting access to remote monitoring and 92% selecting speech intelligibility as the most useful communication outcome.
• Released under a permissive CC-BY-4.0 license, allowing for broad reuse and sharing.

Limitations

• Row count is unknown, which may limit suitability assessment.
• Column-level documentation is absent; field semantics must be inferred after download.
• Data may reflect geographic and linguistic bias inherent to an English-language survey distributed via gatekeepers and social media.

Provenance

Source

figshare

Collection Method

An online English-language survey distributed internationally through gatekeepers and social media.

Freshness

Last updated 2026-04-21 09:20:04; freshness should be verified.

Geography

International (13 countries)