Multi-Stakeholder Perspectives on Patient-Reported Outcomes for CAR-T and BsAbs Therapies

A qualitative research document containing transcribed data from 38 participants across 14 interviews and two focus groups. The study explores challenges in implementing patient-reported outcome measures for myeloma, lymphoma, and leukaemia patients receiving novel immunotherapies. The work was authored by Eilidh M Duncan and last updated in May 2026.

Use Cases

• Identify logistical challenges for PROM implementation based on stakeholder-reported complexities in CAR-T and BsAbs trials.
• Analyze thematic patterns in stakeholder expectations based on qualitative data from patients, carers, and industry representatives.
• Inform the design of improved PROM instruments based on identified under-captured patient-important domains.
• Study evidence synthesis challenges based on reported use of ad-hoc strategies to complement generic and disease-specific tools.

Strengths

• Includes perspectives from a multi-stakeholder group of 38 participants, providing diverse viewpoints.
• Qualitative analysis uses a deductive-inductive mixed approach, suggesting methodological rigor.
• Released under a permissive CC-BY-4.0 license, allowing for reuse and adaptation.

Limitations

• The dataset is a 37.1 KB DOCX file, indicating a very limited textual scope, likely a summary document rather than raw data.
• Row count and column-level documentation are absent; the actual qualitative data (e.g., interview transcripts) is not directly available.
• Description metadata is limited; actual data quality and completeness require manual inspection after download.

Provenance

Source

figshare

Collection Method

Data was collected through online focus groups and interviews, then transcribed for qualitative thematic analysis.

Time Range

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Freshness

Last updated 2026-05-04 04:18:51; freshness should be verified.

Geography

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