Systemic Sclerosis Quality of Life Instrument Across Seven European Countries

University of Leeds researchers adapted and validated the Systemic Sclerosis Quality of Life Questionnaire (SScQoL) for use across seven European countries. The dataset contains translated and culturally validated instrument versions for the UK, France, Italy, Spain, Sweden, Germany, and Poland. Dr. Anthony Redmond and colleagues conducted this cross-cultural validation study to create a common measure of quality of life for systemic sclerosis patients.

Use Cases

• Validate the psychometric properties of the SScQoL instrument across different language versions using patient response data.
• Analyze cross-cultural differences in quality of life scores for systemic sclerosis patients from seven European countries.
• Use the translated questionnaire items to assess quality of life domains like physical function, pain, and emotional well-being in multinational clinical studies.
• Compare the factor structure and item performance of the original English SScQoL with its six translated versions.

Strengths

• Instrument validated across seven distinct European cultures and languages.
• Study provides a common, cross-culturally adapted measure for a specific chronic disease.

Limitations

• The dataset size, specific row count, and individual patient-level data are not publicly described.
• Data collection time range and specific sample sizes per country are unknown from the description.

Provenance

Source

University of Leeds, LIRMM Psychometric laboratory.

Collection Method

Cross-cultural adaptation and psychometric validation of a quality of life questionnaire.

Geography

United Kingdom, France, Italy, Spain, Sweden, Germany, Poland.