Clinical Expert Survey on Wearable Biosensors for Pediatric Cyanotic Heart Disease

A 43.6 KB document presents results from a structured, web-based anonymous survey of pediatric cardiology experts across Europe. The survey, conducted by Roberta Nossa as part of the European OrphaDev4Kids project, captured clinician perspectives on monitoring practices and unmet needs for pediatric cyanotic congenital heart disease (CCHD). It was last updated on 2026-05-19.

Use Cases

• Informing the design of multiparametric wearable biosensors based on identified clinical needs for metabolic and physiological monitoring.
• Understanding clinician priorities for device usability and patient compliance based on survey feedback about comfort and intuitive design.
• Designing data integration and alert systems for clinical workflows based on expert preferences for threshold-based alerts over continuous data streams.
• Developing training and support protocols for new medical devices based on clinician-identified requirements.
• Establishing data governance frameworks for wearable health devices based on clinician emphasis on secure, regulation-compliant data handling.

Strengths

• The dataset is a primary source of expert opinion from pediatric cardiology specialists across Europe.
• The document is licensed under CC-BY-4.0, allowing for broad reuse and sharing.
• The survey methodology is explicitly described, involving a structured questionnaire distributed through EPTRI channels.
• Findings provide actionable guidance for device design, highlighting specific critical phases like infancy before and after surgery.

Limitations

• The dataset is a 43.6 KB DOCX file containing survey results, not a structured data table; column-level documentation is absent.
• The row count and sample data are unknown, limiting quantitative assessment of the underlying survey data.
• The description does not specify the exact number of survey respondents or their geographic distribution within Europe.

Provenance

Source

Roberta Nossa, via the figshare platform.

Collection Method

A structured, web-based anonymous survey distributed through EPTRI channels to pediatric cardiology experts, including members of the OrphaDev4Kids Clinical Expert Committee.

Freshness

Last updated 2026-05-19 05:29:14; freshness should be verified.

Geography

Europe (implied from survey distribution to experts across Europe).