Parkinson's Disease Symptom Concerns from Patients, Caregivers, and Physicians

193 Parkinson's disease patients, 80 caregivers, and their attending physicians at Keio University Hospital participated in a cross-sectional study. They independently ranked the three most troublesome symptoms from a comprehensive list and completed questionnaires on motor complications. The dataset, authored by Shohei Okusa and last updated in May 2026, reveals discrepancies in symptom recognition and perceived burden among the three groups.

Use Cases

• Analyze discrepancies in symptom prioritization based on rankings from patients, caregivers, and physicians.
• Model the perceived burden of motor complications like wearing-off and dyskinesia based on questionnaire responses.
• Identify caregiving-impact symptoms based on caregiver-reported emphasis on axial and non-motor manifestations.
• Study communication gaps in clinical care based on differences in symptom recognition frequency.

Strengths

• Includes perspectives from three distinct stakeholder groups: 193 patients, 80 caregivers, and physicians.
• Data collection involved independent symptom ranking and structured questionnaires on specific motor complications.
• Released under a permissive CC-BY-4.0 license, facilitating reuse and analysis.

Limitations

• Row count is unknown, which may limit suitability assessment for statistical modeling.
• Column-level documentation is absent; field semantics must be inferred after download.
• Data is from a single hospital (Keio University Hospital), which may limit generalizability.

Provenance

Source

figshare, authored by Shohei Okusa.

Collection Method

Cross-sectional study involving questionnaires and symptom ranking.

Time Range

null

Freshness

Last updated 2026-05-04 04:16:46; freshness should be verified.

Geography

Data collected at Keio University Hospital; specific geographic coverage is not stated.