Case Report: Multimodal Management of Late-Stage Bockenheimer Disease

A 16.7 KB document details a single case of a 14-year-old girl with late-stage Bockenheimer disease, a rare venous malformation. The case report, authored by Zilu Wang and last updated in April 2026, describes multimodal therapy including sclerotherapy, anticoagulation, and molecular targeted medication over a 9-month follow-up period. The text discusses the patient's presentation with severe anemia and coagulopathy, the treatment protocol, and outcomes including limb volume reduction and complication of elbow contracture.

Use Cases

• Analyzing multimodal treatment protocols for Bockenheimer disease based on the described combination of sclerotherapy, ligation, anticoagulation, and targeted therapy.
• Studying hematologic complications and recovery in vascular malformations based on the described anemia and coagulopathy profiles.
• Reviewing long-term patient outcomes and potential complications like contracture based on the 9-month follow-up period mentioned.

Strengths

• Provides a detailed, longitudinal account of a single rare disease case over a 9-month follow-up period.
• Explicitly describes a multimodal therapeutic approach, including specific interventions like sclerotherapy and molecular targeted medication.
• Released under a permissive CC-BY-4.0 license, allowing for broad reuse and sharing.

Limitations

• Row count is unknown, which may limit suitability assessment; the dataset is a single case report document.
• Column-level documentation is absent; field semantics must be inferred after download from the narrative text.
• The dataset is very small at 16.7 KB, representing a limited scope of a single case.

Provenance

Source

figshare

Collection Method

Likely a clinical case report authored by a medical professional.

Time Range

The case follow-up period spans at least 9 months, though specific dates are not provided.

Freshness

Last updated 2026-04-30 04:18:13; freshness should be verified.