Between 2008 and 2016, 53 research projects contributed to this pooled dataset containing cross-sectional and partly longitudinal data on over 43,000 older persons and 9,000 informal caregivers in the Netherlands. The 'TOPICS-MDS NPO care receiver-caregiver dyads' subset specifically contains data for 7,600 care receiver-caregiver dyads. It was developed for The National Care for the Elderly Programme (NPO) by the Organisation of Health Research and Development (ZonMw) to ensure uniform outcome measures.
Use Cases
- Analyze the relationship between care receiver health and caregiver burden based on linked dyadic information.
- Study longitudinal changes in physical and mental well-being of older persons based on the described longitudinal data component.
- Model care utilization patterns across the Netherlands based on the national survey scope.
- Compare health outcomes across different research projects using the uniform Minimum DataSet (MDS) framework.
Strengths
- Contains data for over 43,000 older persons and 9,000 informal caregivers, providing substantial scale.
- Includes 7,600 specifically linked care receiver-caregiver dyads, enabling paired analysis.
- Pooled from 53 different research projects between 2008 and 2016, offering broad source diversity.
- Designed with a uniform Minimum DataSet (MDS) to promote comparability between studies.
Limitations
- Column-level documentation is absent; field semantics must be inferred after download.
- Row count for the specific dyads subset is known, but overall dataset structure and other variable counts are unspecified.
- Data collection ended in 2016; freshness for contemporary analysis should be verified.
Provenance
- Source
- The National Care for the Elderly Programme (NPO) / Organisation of Health Research and Development (ZonMw), The Netherlands.
- Collection Method
- Pooled data from 53 contributing research projects using a uniform survey instrument (TOPICS-MDS).
- Time Range
- 2008 to 2016
- Freshness
- Last updated 2025-10-24 03:47:30; data collection period ended in 2016.
- Geography
- Netherlands