67 interview transcripts from 60 participants, including 30 patients with Parkinson's disease and 30 care partners. The data was collected by Hillary Lum via a qualitative descriptive study within a multisite randomized clinical trial. Interviews were conducted between September 2017 and March 2018 at three university sites.
Use Cases
- Analyzing barriers to advance care planning based on interview transcripts.
- Identifying themes for integrating advance care planning into clinical care based on patient and care partner suggestions.
- Studying communication patterns between patients, care partners, and palliative care teams.
- Comparing perspectives across different trial sites, study arms, and participant demographics.
- Exploring the impact of cognitive impairment or high disease severity on advance care planning views.
Strengths
- Data includes 67 transcripts from 60 participants, providing a substantial qualitative corpus.
- Participants were purposefully selected across three trial sites, study arms, and sex to ensure representation.
- The sample includes variance from individuals with cognitive impairment, high disease severity, or lacking a care partner.
Limitations
- Column-level documentation is absent; field semantics must be inferred after download.
- Row count is unknown, which may limit suitability assessment.
- Freshness should be verified; data collection ended in March 2018.
Provenance
- Source
- Hillary Lum, QDR Harvested Dataverse.
- Collection Method
- Individual interviews conducted by trained qualitative research assistants.
- Time Range
- September 2017 to March 2018.
- Freshness
- Last updated 2025-10-20 19:59:09; freshness should be verified.
- Geography
- Three sites: University of California San Francisco, University of Alberta, University of Colorado Denver/Anschutz Medical Campus.